Updated November 2017:
*Molly‘s g-tube surgery was fully-funded and completed early this week! *Mol is already adapting well, better than doctors expected. She is taking pediasure slowly to supplement the food she eats by mouth (this is *Molly’s preferred way of eating; however, she isn’t gaining the weight she should – details on why this happens are covered below).
For *Molly, the g-tube is meant to be a supplement, not a replacement. This will also allow her to receive liquids more effectively, leading to less dehydration. She was having issues taking the medication needed to help with healing by mouth, so that was instituted as a tube feed, as well. Now, when *Mol gets sick or doesn’t feel like eating, she can still get the calories and hydration she needs to be healthy. This surgery has her well on her way toward her upcoming hip surgery, which will hopefully fix some issues with pain caused by the joint!
*Molly is listed for international adoption on the adoption advocacy website Reece’s Rainbow! Learn more by visiting the ‘Waiting Children’ under the ‘Adoption Advocacy’ tab in the top bar of my blog! She is eligible for an Older Child Grant – learn more at RR’s site (link in previous paragraph)!
PD: *Molly’s face from below her eyes to about mid-chest. Her shoulder & hand can also be seen. She has a huge grin on her face, wearing a crochet top. Words written to the side of the photo read “Molly’s Surgery”.
*Molly has CP which affects her entire body, and she uses a customized wheelchair to get around. *Mol has a lot coming up! She will be having a hip surgery to correct an issue caused by her positioning in her wheelchair, as transitioning to sitting up most of the time rather than laying on a flat surface has put strain on her joints, and the spasticity caused by having cerebral palsy makes those joints tighten.
*Molly loves spending time with her family, and especially to be included in activities with everyone else. She does not want to be excluded from all the fun just because she is a wheelchair user. Recently, *Mol got to join in on some sensory play!
“Picture description: Taken above, you can see the tops of the heads of (L-R) *Molly, *Lily, *Chloe, *Cedar, Deepa, *Mae, *Selah, *Teagan, and *Nolan (*Dinah & *Jasmine are just outside the frame of the picture, but were in on the fun!). The kids are in bathing suits and it is a MESS! Bowls and buckets of hair gel, baby powder, paint, & sand. Some kids have little cups & are scooping & pouring. Others are painting themselves or each other! This was near the end of our play time, & most of the paint & baby powder is now gone from the bowls & spread all over the kids & the floor (& walls!)”
*Molly is a bright student who loves to learn. She is currently working on reading ‘Bob’ books, or short books meant for beginning readers. Because her CP affects both her speech and the use of her hands, she uses eye-gaze technology with the help of a laptop computer. This computer allows her to formulate her thoughts and ideas into words and sentences, as well as communicate her wants and needs, and serve as an educational tool, as games and education programs can be downloaded onto the technology.
PD: *Molly sits cross-legged at the park w/ grass behind her in a white dress. She is wearing a giant hot pink hair bow & matching leggings. Text on the side of the photo reads “Help Molly Flourish with a Feeding Tube”
To learn more about the decision to go forward with a feeding tube placement surgery, read on. The following is a Facebook/email newsletter post written by one of *Molly’s foster moms, Merissa:
“Recently, we decided to pursue getting a feeding tube for *Molly. Ultimately, this will provide her with a way to get more calories, gain weight, and hopefully have more energy, strength, and stability with her health.
We are hoping to get the feeding tube placed ASAP! One, we want *Molly to access the benefits it will bring as quickly as possible. Also, it is likely that *Molly will be undergoing a major orthopedic surgery in late December/early January. We want her body to be as strong as possible going into this surgery, and the tube will help with that immensely!
The tube itself, as well as the surgery costs are quoted at $725 USD. We are unable to move forward with the surgery until we have the funds raised!
If you are able to contribute towards this cost, please do so HERE. Thank you so much for your support of *Molly!!”
You can read more about the feeding tube decision on Merissa’s blog.
$725/$725 HAS COME IN SO FAR FOR THIS NEED, MEANING IT IS FULLY SPONSORED!
Both upcoming surgeries will be huge benefits to *Molly. She needs the hip surgery, and in order to get her into the best shape, the feeding tube is necessary, because as stated in Merissa’s blog, *Molly has a very high metabolism due to her CP. Rather than making her eat by mouth around the clock, which would exclude her from many family and school activities, the feeding tube will allow her to gain weight slowly, while also continuing to enjoy eating. It will also ease *Molly’s difficulty with drinking, which is caused by how her CP affects her mouth. She can easily become dehydrated, even when she drinks frequently, due to the inefficiency caused by these complications.
PD: *Molly, in this photo taken from above, uses her eye gaze computer whilst sitting at the table in her wheelchair. She wears a floral dress w/ huge pink bow in her hair.
Surgeries like these can improve the quality of life of persons with disabilities, if it is determined they will benefit from the interventions, and it is important that they have access to these interventions if they so choose to pursue them (or if their parents choose to pursue them, if underage). It is important that everyone feel comfortable in their own skin, and no one deserves to suffer from treatable complications. *Molly is such a special girl, who deserves to be pain-free so she can enjoy life to the fullest.
Can you help cover this need? As stated earlier in this post, you can learn more about what a feeding tube is, what it does, and why *Mol’s foster moms have decided it is the best option for her by reading Merissa’s linked blog post about the subject. They want her to be happy, healthy, and comfortable always!
If you’re interested in learning about other ways to support SCH, here are some additional resources:
Learn more about the school that is run out of Courage Home Purple, where *Mol lives, for her siblings and other community members who are blind or visually impaired (called Anjali School for the Blind), here. You can also donate toward operational costs for the school at the link.
An important part of SCH’s work is YOU! SCH relies on donations to keep running. Donation opportunities include child sponsorship at any cost per month, from as low as $25/month. Sponsorship usually costs between $300 and $500 per child, depending on complexity of needs and which city they live in (Ongole or Hyderabad).
You can sponsor any child who needs additional funding at SCH by using the resources found here. Use these resources to get involved in other ways, such as becoming an advocate or volunteering. You can also become a medical sponsor (ideal for large groups or organizations who wish to support SCH) and donate toward monthly emergency medical expenses; or become an educational sponsor and donate toward a specific on-site school!
Also, here is the link to SCH’s general fund. In addition, you can give a one-time donation to any home by visiting each home’s landing page on SCH’s official website, under the heading “Meet Our Kids”! Learn about other ways to give charitably to SCH here, and check back often for additional opportunities.
*A note about names: SCH uses online nicknames for the children in order to protect their identity, per Indian government guidelines which state that children in care may not have identifying photos of them on the internet, as well as no identifying information such as birth name, place of origin, etc.